Exploring the Experiences of Spousal and Child Caregivers from Minority Groups Caring for Family Members at the End-of-Life.
About
Family caregivers play a significant role in caring for the elderly, however there are often limited resources available to them, particularly to caregivers from ethno-cultural and linguistic minority groups. To better understand how to support caregivers, this study examines the experiences of family caregivers of individuals at the end-of-life who belong to linguistic or visible minority groups. This study has three objectives: (1) To document the experiences of spousal and child caregivers for individuals at the end-of-life by exploring the nuances related to racial, ethno-cultural, and linguistic minority status; (2) To understand the experiences and/or perceptions of palliative care support and resources for caregivers from minority groups; and (3) To explore how caregiving experiences impact caregivers who are, or anticipate to soon become, care-recipients themselves in terms of decisions about their own care.
Funding
Health Canada, Pan-Canadian Palliative Care Research Collaborative Seed Funding
Research Team
Project co-Leads: Krystal Kehoe MacLeod kmacleod@bruyere.org, Wenshan Li wensli@ohri.ca
presentation
Hammond E, Li W, Johnston S, Karunananthan S, Murray M, Richer S, Tanuseputro P, Kehoe MacLeod K. June 26-28, 2024. Exploring the Experiences of Caregivers from Linguistic and Cultural Minority Groups Caring for Family Members at the End-of-Life. Qualitative Analysis Conference. Brantford, Ontario, Canada. Oral Presentation.
Kehoe MacLeod K, Richer S, Karunananthan S, Johnston S, Li W. June 9-11, 2024. Exploring the Experiences of Family Caregivers from Linguistic and Cultural Minority Groups Caring for Family Members at the End-of-Life. Hospice Palliative Care Ontario 2024. Richmond Hill, Canada. Oral presentation.
Li W and Kehoe MacLeod K. (May 29-30, 2024). Exploring the Experiences of Spousal and Child Caregivers from Minority Groups Caring for Family Members at the End-of-Life, Pan-Canadian Palliative Care Research Collaborative Annual Meeting. Toronto, Ontario. Oral presentation.
